{"id":5391,"date":"2024-09-25T22:16:21","date_gmt":"2024-09-25T20:16:21","guid":{"rendered":"https:\/\/gesed.org\/?p=5391"},"modified":"2024-10-17T11:08:34","modified_gmt":"2024-10-17T09:08:34","slug":"prendre-soin-des-personnes-atteintes-dune-maladie-rare","status":"publish","type":"post","link":"https:\/\/gesed.com\/index.php\/2024\/09\/25\/prendre-soin-des-personnes-atteintes-dune-maladie-rare\/","title":{"rendered":"Prendre soin des personnes atteintes d&rsquo;une maladie rare"},"content":{"rendered":"\n<p><a href=\"https:\/\/media.kbs-frb.be\/fr\/media\/9117\/Publication_MR_fev2022_fr\" target=\"_blank\" rel=\"noreferrer noopener\"><em>Lisez ici la publication de la Fondation Roi Baudouin<\/em><\/a><\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img fetchpriority=\"high\" decoding=\"async\" width=\"230\" height=\"230\" src=\"https:\/\/gesed.com\/wp-content\/uploads\/2024\/09\/Publication_RareDiseases_2022_FR.jpg\" alt=\"\" class=\"wp-image-5392\" style=\"width:306px;height:auto\" srcset=\"https:\/\/gesed.com\/wp-content\/uploads\/2024\/09\/Publication_RareDiseases_2022_FR.jpg 230w, https:\/\/gesed.com\/wp-content\/uploads\/2024\/09\/Publication_RareDiseases_2022_FR-150x150.jpg 150w\" sizes=\"(max-width: 230px) 100vw, 230px\" \/><\/figure>\n\n\n\n<p>Un \u00e9tat des lieux de la prise en charge des personnes atteintes d&rsquo;une maladie rare en 2021 et 5 recommandations pour des actions prioritaires.<\/p>\n\n\n\n<p>Merci pour ce apport du Fonds Maladies rares et M\u00e9dicaments orphelins \u00e0 la Fondation Roi Baudouin.<\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Lisez ici la publication de la Fondation Roi Baudouin Un \u00e9tat des lieux de la prise en charge des personnes atteintes d&rsquo;une maladie rare en 2021 et 5 recommandations pour des actions prioritaires. Merci pour ce apport du Fonds Maladies rares et M\u00e9dicaments orphelins \u00e0 la Fondation Roi Baudouin.<\/p>\n","protected":false},"author":1,"featured_media":5392,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ocean_post_layout":"","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"","ocean_second_sidebar":"","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"","ocean_custom_header_template":"","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"","ocean_menu_typo_font_family":"","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"default","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"default","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"","ocean_post_oembed":"","ocean_post_self_hosted_media":"","ocean_post_video_embed":"","ocean_link_format":"","ocean_link_format_target":"self","ocean_quote_format":"","ocean_quote_format_link":"post","ocean_gallery_link_images":"on","ocean_gallery_id":[],"footnotes":""},"categories":[18],"tags":[],"class_list":["post-5391","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news-general","entry","has-media"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Prendre soin des personnes atteintes d&#039;une maladie rare - Gesed<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/gesed.com\/index.php\/2024\/09\/25\/prendre-soin-des-personnes-atteintes-dune-maladie-rare\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Prendre soin des personnes atteintes d&#039;une maladie rare - Gesed\" \/>\n<meta property=\"og:description\" content=\"Lisez ici la publication de la Fondation Roi Baudouin Un \u00e9tat des lieux de la prise en charge des personnes atteintes d&rsquo;une maladie rare en 2021 et 5 recommandations pour des actions prioritaires. 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