{"id":5792,"date":"2024-10-09T15:35:24","date_gmt":"2024-10-09T13:35:24","guid":{"rendered":"https:\/\/gesed.org\/?p=5792"},"modified":"2024-10-09T15:42:08","modified_gmt":"2024-10-09T13:42:08","slug":"vivre-avec-le-combat-de-matthieu-contre-le-syndrome-dehlers-danlos","status":"publish","type":"post","link":"https:\/\/gesed.com\/index.php\/2024\/10\/09\/vivre-avec-le-combat-de-matthieu-contre-le-syndrome-dehlers-danlos\/","title":{"rendered":"Vivre avec : Le combat de Matthieu contre le Syndrome d\u2019Ehlers Danlos"},"content":{"rendered":"\n<p>La cha\u00eene YouTube <a href=\"https:\/\/www.autonomia.org\/article\/vivre-avec-le-combat-de-matthieu-contre-le-syndrome-d-ehlers-danlos\" target=\"_blank\" rel=\"noreferrer noopener\">\u00ab\u00a0Vivre avec\u00a0\u00bb<\/a> offre un regard intime sur le quotidien de Matthieu, un jeune homme confront\u00e9 au Syndrome d&rsquo;Ehlers Danlos, une maladie g\u00e9n\u00e9tique rare affectant le tissu conjonctif et entra\u00eenant des anomalies du collag\u00e8ne. Apr\u00e8s des ann\u00e9es d&rsquo;errance m\u00e9dicale, Matthieu a d\u00e9couvert cette maladie chronique \u00e0 l&rsquo;\u00e2ge de 16 ans, d\u00e9voilant les douleurs articulaires, la grande fatigue et la fragilit\u00e9 de la peau qui l&rsquo;accompagnent.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter\"><a href=\"https:\/\/www.autonomia.org\/article\/vivre-avec-le-combat-de-matthieu-contre-le-syndrome-d-ehlers-danlos\" target=\"_blank\" rel=\"noreferrer noopener\"><img decoding=\"async\" src=\"https:\/\/i.ytimg.com\/vi\/zT57EhanfD8\/hqdefault.jpg\" alt=\"Play: Video\"\/><\/a><\/figure>\n<\/div>\n\n\n<div style=\"height:122px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>La cha\u00eene YouTube \u00ab\u00a0Vivre avec\u00a0\u00bb offre un regard intime sur le quotidien de Matthieu, un jeune homme confront\u00e9 au Syndrome d&rsquo;Ehlers Danlos, une maladie g\u00e9n\u00e9tique rare affectant le tissu conjonctif et entra\u00eenant des anomalies du collag\u00e8ne. Apr\u00e8s des ann\u00e9es d&rsquo;errance m\u00e9dicale, Matthieu a d\u00e9couvert cette maladie chronique \u00e0 l&rsquo;\u00e2ge de 16 ans, d\u00e9voilant les douleurs articulaires, la grande fatigue et la fragilit\u00e9 de la peau qui l&rsquo;accompagnent.<\/p>\n","protected":false},"author":1,"featured_media":5795,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"ocean_post_layout":"","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"","ocean_second_sidebar":"","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"","ocean_custom_header_template":"","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"","ocean_menu_typo_font_family":"","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"default","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"default","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"","ocean_post_oembed":"","ocean_post_self_hosted_media":"","ocean_post_video_embed":"","ocean_link_format":"","ocean_link_format_target":"self","ocean_quote_format":"","ocean_quote_format_link":"post","ocean_gallery_link_images":"on","ocean_gallery_id":[],"footnotes":""},"categories":[22],"tags":[],"class_list":["post-5792","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-temoignage","entry","has-media"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Vivre avec : Le combat de Matthieu contre le Syndrome d\u2019Ehlers Danlos - Gesed<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/gesed.com\/index.php\/2024\/10\/09\/vivre-avec-le-combat-de-matthieu-contre-le-syndrome-dehlers-danlos\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vivre avec : Le combat de Matthieu contre le Syndrome d\u2019Ehlers Danlos - Gesed\" \/>\n<meta property=\"og:description\" content=\"La cha\u00eene YouTube \u00ab\u00a0Vivre avec\u00a0\u00bb offre un regard intime sur le quotidien de Matthieu, un jeune homme confront\u00e9 au Syndrome d&rsquo;Ehlers Danlos, une maladie g\u00e9n\u00e9tique rare affectant le tissu conjonctif et entra\u00eenant des anomalies du collag\u00e8ne. 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